Feeling better

Feeling better and not on a drip any more

So had a shower and been outside to the garden to get some fresh air!

This is the Garden that was on television!

Had Dominoes pizza for tea, thank you to the Teenage Cancer Trust for the pizza!!

Back on ward 84

I'm back on Ward 84!

They have given me lots of morphine and I can now get up and move about!

They are keeping me in and I am having surgery on Thursday to have a PORT fitted so I can start my Chemo.

Treatment Plan

On Monday I am going to have an MRI scan to double check my chest again and the following Thursday I am having an operation to put my line in.

This time I am going to have a Portacath because unlike a Hickman line, it only needs flushing once every month, is less likely to get infected and is waterproof!

However, on Saturday night, my neck pain suddenly became unbearable and I was unable to hold my head up or move at all. In the morning it was no better and I couldn't even get up to go to the toilet! We decided to ring Ward 84 for some advice and they said we are fully eligible to ring an ambulance to help me get to the hospital as there was no way I could have sat up in a car.

They arrived and gave me morphine, gas and air and a neck collar. To be honest, I've always wanted to see what it is like in an ambulance! We were soon in Manchester A&E and I had an MRI scan on my neck to check if anything had changed but luckily, it was the same. We got a bed on Ward 84.

By Thursday, my neck was feeling a lot more mobile and I was ready to have my line in and then start chemo straight away.

This time, I am having different types of chemo (Topotecan, Mum says Toffee Pecan sounds better, and Cyclophosphamide) every three weeks for 5 days and have 6 cycles of it. However, each day it only lasts for about 3 hours so I get to choose whether I stay in for five days or come in each day.

For the first cycle I decided to stay in.

I always wanted a ride in an ambulance!

Well Sunday morning I woke with a really bad pain in my neck!!!!!!!!

I could not move or sit up or go for a wee!!!!

We tried Ibuprofen, Paracetamol & even Codine but nothing worked!!

We rang the hospital for advice and they said ring for an ambulance and they will take me to Manchester Hospital!

Two very nice paramedics arrived and gave me morphine and entonox and I was able to move and was put in the ambulance.

Thank you to Jamie Clift and Petra Pleace for looking after me. You were BRILLIANT!!!!!

This was not in the plan!

In October I started to have a pain in the sides of my neck.

We visited the doctors who had a look and put it down to muscle spasm from gymnastics or dancing.

It came and went over Christmas and I started to wake up in the night with it and struggled to get it comfy.

When it came up to my annual three monthly check up with Doctor Brennan for my back we mentioned my neck pain and had an MRI scan the following Thursday. We got the results back and the radiographers had found something 'unusual' on C2 in my neck. They arranged a PET scan where they inject radioactive sugar into me and then they can detect any rapid growth. A few days later we went to go and get the results and unfortunately my cancer has come back in my neck on C2!

It is Ewing's Sarcoma again but this time is very small!  I am going to have my line in next Thursday and start chemo again.