Leavers Week...

This week I managed to get to school everyday.


Tuesday 17th July

Today my class went bowling at Middlebrook. I managed to do a full day and really enjoyed it.

Thursday 19th July

After school today it was my leavers party.  Here are a few pictures of me with my friends...

Friday 20th July

My last day at Primary School...

This morning I had my leavers assembly. Today I managed to do another full day at school.

And at 3:30pm I walked out for the last time...

Strength and resilience award...

I was nominated for an award at the Chorley Schools Sports Partnership Awards evening. This was at Chorley Town Hall.

I was given a special award for Strength and Resilience. 

When I went up on stage I got a standing ovation! A lot of people had tears in their eyes.

 This is what I got the award for...

This year we have a special award for a year 6 pupil from Anderton CP. 

Sally Cornes. Sally became ill in September last year and has spent much of the year undergoing treatment at Manchester children’s hospital and also in Germany. This has not stopped Sally doing what she loves and that’s to dance. Not only did she still perform in the annual panto in Adlington at Christmas but she has continued to attend school as often as she’s been able to and for the second year running be part of our academy. She even made her consultant change her treatment date so she could perform at the school games and attend her y7 induction day at her new high school. Even when Sally has been unable to attend rehearsals she has caught up by asking a friend to teach her what she’s missed and always returns knowing exactly what she should be doing. Sally has fought and won her battle and is now just in the mop up stages of her treatment. She’s an absolute inspiration to everyone who meets her and we are all so proud of her. 

We’d like Sally to except a special award for strength and resilience.

Chemo round 5

This morning we went to the hospital had a thumb prick and luckily I passed this time! I only started chemo at 5pm as the pharmacy lost my prescription for the antisickness! During the night I was sick several times but by morning I felt a bit better. Chemo round 5 was all finished at 9pm Tuesday.

Now there are only 3 more left until the end!!!
I can't wait!!!

Very busy week.....

Tuesday  3rd July

Today I danced at the Lancashire School Games at Stanley Park in Blackpool. Here is a video of me dancing.

Wednesday  4th

As I am starting Parklands High School in September, today was my Induction Day. I did a full day there and I really enjoyed it. I can't wait to start in September! Before I went I had a big decision to make..... wig or beanie hat? Eventually, I decided to just wear my beanie hat as in September I will have to take my wig off anyway for PE and why pretend to be somebody I'm not?

I was very tired after a full day but no time to stop as I had to go straight to the hospital for a blood test for chemo. After a blood test we went straight home because I have Guides on a Wednesday evening.


Thursday  5th

This morning we had a phone call informing us that I had failed my blood test so no chemo this week, try again on Monday.


Friday  6th

This morning I woke up with a headache and a temperature of 37.4. Luckily it wasn't high enough to be classed as an infection. Throughout the day I felt tired, had a headache and my temperature kept going up and down. At one point it got to 37.6! If it gets to 38 I have to get admitted into hospital! The problem was it was my school play that nignt so I had to let school know if I was well enough to do it or not. In the end I had some paracetamol and did the play. Afterwards I was glad I took part.


Saturday  7th

Today it was Adlington Carnival. As I was still really tired I did it in my wheel chair. I still really enjoyed doing it though. I did it with Guides and the theme for us was "jobs women couldn't do 100 years ago" so I dressed as someone from the army.

Not feeling well!

Since Wednesday 27th I have started to feel very tired. On Friday 29th we decided it would be a good idea to go and have a blood test done to make sure I don't need a blood transfusion. We went to Preston hospital as it is closer than Manchester. We ended up waiting 2 hours just for a blood test! Eventually, we went home to wait for the results.

They soon rang up with the results. I don't need a blood transfusion as my bloods are fine but we had to go back to see the doctor.

We went to my school's summer fair but whilst we were there I started to have a head ache and feel really sick. Mum took me home where I was sick and had some paracetamol for my head ache.

On the way back to the hospital I started to feel a lot better and my head ache had calmed down.

We saw the doctor who said everything is fine I just need to rest!

Today I am feeling miles better just still very tired!

Banned from school!

This week, on Monday and Tuesday, I went into school for most of the day. On Tuesday evening we heard that there was a sickness bug going round. The following morning we decided to ring school to ask if it is safe to come in but as there were a few people off in my class, they advised me to stay at home for the rest of the week. So I kept myself busy...

The Floss.....

When I arrived at the hospital a few of the nurses were waiting for me. They  knew I had been to a dance rehearsal and they asked me if I could do "The Floss." I gave them a lesson and within a few minutes everyone was doing it!

Chemo round 4...

I was due chemo round 4 today but really wanted to see all my school friends and it was Bikeability today. I also had a dance rehearsal for the Lancashire School Games.

We decided to go to the hospital for a blood test, go to school for Bikeability, go to dancing and then go back to the hospital for chemo.

We arrived on Monday night at 7:30pm. I was all wired up by 8pm all finished by 10pm Tuesday. This chemo went a lot better than the one in Germany as I didn't feel sick at all.

Ringing The Bell!!!

YAY!!! 30/30 protons completed.

Today is a very happy & sad day. At the end of Proton the patients get to ring the bell to celebrate the end of PBT in Germany.

I am very happy that I can now go home but sad because I will miss all the fantastic doctors & nurses here in Essen.

This is the Proton Machine

This is Dr. Tippelt who was my oncologist in Essen & the nurse who flushed my line every week.

After saying our goodbyes it was time to celebrate with pizza & ice-cream!!!!!

Team Cornes

I'm on my way home!!!

CT scan

Today we got handed a disk with my CT scan pictures on which I had during my initial consultation.

This clearly shows my missing rib

Proton Room....

One of the nurses videod me walking into the Proton room. It is quite a long walk......

I also took a panorama of the room as only me and the nurses are allowed in. 

5th Birthday!!!

Today was the WPE's 5th birthday! There was cake, drinks, a magician and an acro team. The WPE took 7 years to build.

Itchy back.......

My back is quite red now and it is very itchy. The Doctor prescribed some cream to put on the radiation area to help the itchyness. He also gave us 5 GCSF injections as my bloods are very low (white blood cells 0.99). That explains why I am so tired!!! I have now done 20 protons!!!

Unexpected guests......

This morning we went to the proton centre like usual but when I walked out of proton I looked over my left shoulder and saw my Nan and Grandad (Mum's Mum and Dad)! WOW!!! We certainly wasn't expecting that!!!

They arrived late last night and they are staying until Monday.

On Friday we took them to Grugapark & went on the little train.













At Grugapark we also went up a really tall tower where we could see the whole hospital from the top!


On Saturday it was my Grandad's birthday. Happy Birthday Grandad!!!
We went to Werden by the River Ruhr. We all went on a pedalo, which was really fun!!! It was an extremely hot day!!!

Monday 21st

Monday is a bank holiday here!!!

Milly and Mum went swimming at the open air pool (50M long) Milly is trying to continue her training schedule, her coach has sent her a program to follow. Mum was having trouble keeping up with her!!

I was in my wheelchair on the side with today's program and was giving the next instruction.

It was very hot that day!

On the way back we called for Pizza, they are so big Milly and me have one between us!

Tuesday - Well back to my protons....

I had my protons in the morning and still feeling very tired we went to Ruttenscheider and had some lunch at a small cafe.
We then went back to the apartment as I was very sleepy.

These protons are really making me tired so they must be having an effect!



Wednesday - More Protons  BUT AT 7:30 in the morning! Far too early for me (I'm tired)
Went back to the apartment after protons and went back to bed!
We had some lunch then took the tram to Steele and had an afternoon ice-cream!

Passing my blood test!

When I had my blood test today my White Blood Cells were on 1.92. So close! ( should be 2.0 )

 Dr Tippelt (the children's oncologist) really wanted the chemo to go ahead anyway but he had to discuss it with his team.

Friday 18th May

When we went to the WPE this morning Dr Tipplet told us that the Chemo is going ahead!!!! I had my protons and then we walked up to the KinderKlinic (children Hospital). The nurses set up the chemo for me and showed us to my room. The room was really small! Next to me was an older girl who has Ewing Sarcoma as well. She is from Greece and she is living in Germany for 1 year as the hospitals in Greace aren't very good. Luckily she could speak English! The play room was almost 4 times the size of Manchester's! The best bit was that the ward has a balcony so you can sit in the sunshine whilst having chemo. How good is that!?!

On Saturday morning I woke up at 2am feeling really sick! I couldn't stop being sick until 3am when the nurse prescribed an antisickness. It worked until about 8am when the day nurse came in with my usual antisickness tablet. Started having it and then I was sick twice again! The day nurse told us that one of the antisicknesses had been crossed off the list. She gave it me anyway and about 20minutes later I started to feel so much better!

By Saturday afternoon it was time to go back to the apartment. I went back in my wheelchair as I was feeling very tired and out of breath.

It was quite difficult getting on and of the trams and underground with my wheelchair. But I got back to the apartment and relaxed.