A well deserved Holiday!!

HOLIDAY TIME........

After missing out on a few holidays due to treatment, we decided it was time for a well deserved hoilday in the caravan.

We went to Kendal over Easter. We did a couple of walks, made pancakes, ate Kendal Mint cake and went into the town shopping.

For Christmas I got a camera & on our walks I loved taking pictures with it. My dad taught me how to take several pictures in a row which helped me take pictures of the water while Milly threw stones into the river......

School again!!!!

I managed to have a morning at school today after finishing chemo on Wednesday  morning! When I came home at 12pm I realised that it probably wasn't a great idea to go to school as I got really tired and when I got home in the afternoon I was in bed for the rest of the day. I just have to remember that it is still only 2 weeks since my surgery!

"Clean up" chemo round 1!

Today is my dads birthday! Happy birthday dad!!!!

Like usual I wasn't bored because I always found my self something to do like.....

Painting easter chics, writing notes on the whiteboard, eating, sleeping, colouring in pencil cases and counting my beads of courage.

Time to Shine

I have been nominated for an award  "Child of Courage "

The awards evening is at Chorley Town Hall tonight.

All the children who had been selected for the final got an award and I was one of them!

When we got there we realised it was being hosted by Steve Marsh from the Rock FM Breakfast Show!

He was also BIG COOK in children's program Big cook Little cook!

I was really excited to meet him as I listen to him every morning on the radio!

During the interval I got to meet him and he promised to give me a shout out on the radio!

A big thank you to Kirsten and her Mum Gill for nominating me....

Feeling much better

They are removing the pumps one at a time and I am feeling better! There's no stopping me now!!

I did a lap of the ward and I am now feel really tired.

                                                       We decorated my room's window.

In the afternoon they removed all the pipes and pumps and say I CAN GO HOME!!!!!!!

I pack all my stuff up and go home!    ALL DONE!

Wednesday 14th March

Today I am just resting at home, I am really tired!

Fish and Chips!

Today I am feeling much better and had Fish and Chips for my lunch!

The Surgeon came to visit me and said I looked fab! He said I could have my catheter removed today so I will be more comfortable!

                                                               Dr. Farrelly, my surgeon

Sunday - Mothers day

Today my mum is in hospital with me and I have sneeked a card in for her.

They said I was doing so well that they can remove the drain pipes in my back YAY!

Taking the pipes out REALLY HURT!!!!!!!!!!!!!!

But I feel better without them!  Step nearer going home!

Recovering from my operation!

Friday 9th March

At 5am this morning my temperature spiked to 38.2. this is not good!

The doctors started giving me lots of antibiotics and paracetamol every 6 hours!

Because my temperature keeps going above 38 they are worried about infections and low immunity due to chemo, so they are moving me from a ward with 4 beds to an isolation room with just me in it!
This is much better as we have more space and our own bathroom!

The pain in my back and lung is really bad, so they are giving me paracetamol, morphine and ketamine also chirocane is being pumped directly into my back!
I also have 2 drain lines going into my back to take the fluid out of where my lung should be.

So I have 7 pipes connected to me! Very hard to sleep at night because of the pain, all the pipes and the pumps beebing all night!

 Milly came to see me this morning.


Saturday 10th march

I am starting to feel a little better and the nurses have turned the painkiller pumps down a little!
This afternoon I had a chest X-Ray to check there is no fluid in my lung. My nurse said it would be better for me to try sitting up more today so the lungs will naturally clear any fluid. I managed to sit in a chair for 45 minutes.

Milly visited me again today and she cheered me up!

In Recovery

At 2.10pm the surgeon came to the ward to tell us that Sally was fine & was now in recovery.
He explained that the operation had all gone according to plan. He had  removed only the one rib & a 50p piece size of the lung. He said he could see nothing else that needed removing. Everything had been sent to Pathology for testing. We then had to wait another hour before we could see her.

 

Surgery!!!!!

We set off at 6.10am in the snow. We had to be there for 7.30am. This time I am on Ward 77.












The anaesthetist came to see me first, then Dr. Farrelly & his team. He drew an arrow on my back.












(By Mum)
At 9am Sally was walking to theatre with mum, dad & our nurse for the day, Daniele. (With one l). Only one of us was allowed in the pre-operative room so dad stayed in the waiting room.
When they were putting Sally to sleep she remembered to count this time & managed to get to 9!!!
I then had to leave Sally in their capable hands.

We now had time to kill. Dr. Farrelly had said the op would be 3-4 hours minimum.

So what do mum & dad do for the next few hours?
Well, Richard has a couple of machines on his work schedule for March at Manchester hospital & he suggested that he could do them today! Obviously, I wasn't too impressed at the idea until he suggested I go with him. A chance to see the machines he works on? Why not? It'll fill some time. Better than pacing the floor!

 

Visit To See Surgeon

Wednesday 28th February

Today we had an appointment to see Dr. Farrelly, my surgeon. I went with a list of questions. He was very nice & answered all my questions.

The MRI scan shows some of the rib eaten away.





















The good news is that we could not see the tumour on the scan!!! It has been zapped by the chemo.

oops.......

We have been making the most of the last few weeks & I've been feeling fine. Life has been quite normal. I've kept busy though.

I made a new wiggle bag!!!

We had a trip to Dore to see our friends. Unfortunately I had a little accident!! We went to play in the garden & I fell off the monkey bars & broke my wrist!! Oooops.
My mum didn't look too impressed!!!

Going to school!

Monday 5th February

Today I felt fine so I went to school (9am-1pm). After school I went to dancing and joined in with all three classes!!! 

Tuesday 6th February

Today I also went to school 9am -1pm and after school Milly and I had our piano lesson.

Wednesday 7th February

I was still feeling fine this morning so I decided that I was well enough to do a full day at school as I knew my class were making pizzas today!!!!
I went to Guides tonight.


Thursday 8th February

This morning the nurses came to flush my line so I went into school at 10am and came out at 2.30pm even though my mum thinks I could of stayed until 3.30pm, which is when my school finishes.



Friday 9th February

Today I decided to do a full day at school.


Saturday 10th February

Today I was still feeling fine and I felt well enough to go to dancing.

Home Again!!!!!!

We got home at 7pm on Thursday and now I have 5 weeks at home!!!!!! No more VIDE chemo for me!!!!!!!

( Counting down the time )

After being stuck in the hospital all week we decided it would be a good idea to take Daisy for a walk where we can take the wheelchair so I could get some fresh air. After our walk I even felt up to having a bit of tea.

3rd Februrary

Today we had some breakfast and took Daisy for a walk round Astley Park. I usually go dancing on Saturday but I was still feeling tired.

4th February

Today I am feeling much better. It must be all the fresh air!!!! So we went for another walk. 

Later, I was back at the hospital for another MRI scan that will help plan the surgery.