Recovering from my operation!

Friday 9th March

At 5am this morning my temperature spiked to 38.2. this is not good!

The doctors started giving me lots of antibiotics and paracetamol every 6 hours!

Because my temperature keeps going above 38 they are worried about infections and low immunity due to chemo, so they are moving me from a ward with 4 beds to an isolation room with just me in it!
This is much better as we have more space and our own bathroom!

The pain in my back and lung is really bad, so they are giving me paracetamol, morphine and ketamine also chirocane is being pumped directly into my back!
I also have 2 drain lines going into my back to take the fluid out of where my lung should be.

So I have 7 pipes connected to me! Very hard to sleep at night because of the pain, all the pipes and the pumps beebing all night!

 Milly came to see me this morning.


Saturday 10th march

I am starting to feel a little better and the nurses have turned the painkiller pumps down a little!
This afternoon I had a chest X-Ray to check there is no fluid in my lung. My nurse said it would be better for me to try sitting up more today so the lungs will naturally clear any fluid. I managed to sit in a chair for 45 minutes.

Milly visited me again today and she cheered me up!

In Recovery

At 2.10pm the surgeon came to the ward to tell us that Sally was fine & was now in recovery.
He explained that the operation had all gone according to plan. He had  removed only the one rib & a 50p piece size of the lung. He said he could see nothing else that needed removing. Everything had been sent to Pathology for testing. We then had to wait another hour before we could see her.

 

Surgery!!!!!

We set off at 6.10am in the snow. We had to be there for 7.30am. This time I am on Ward 77.












The anaesthetist came to see me first, then Dr. Farrelly & his team. He drew an arrow on my back.












(By Mum)
At 9am Sally was walking to theatre with mum, dad & our nurse for the day, Daniele. (With one l). Only one of us was allowed in the pre-operative room so dad stayed in the waiting room.
When they were putting Sally to sleep she remembered to count this time & managed to get to 9!!!
I then had to leave Sally in their capable hands.

We now had time to kill. Dr. Farrelly had said the op would be 3-4 hours minimum.

So what do mum & dad do for the next few hours?
Well, Richard has a couple of machines on his work schedule for March at Manchester hospital & he suggested that he could do them today! Obviously, I wasn't too impressed at the idea until he suggested I go with him. A chance to see the machines he works on? Why not? It'll fill some time. Better than pacing the floor!

 

Visit To See Surgeon

Wednesday 28th February

Today we had an appointment to see Dr. Farrelly, my surgeon. I went with a list of questions. He was very nice & answered all my questions.

The MRI scan shows some of the rib eaten away.





















The good news is that we could not see the tumour on the scan!!! It has been zapped by the chemo.

oops.......

We have been making the most of the last few weeks & I've been feeling fine. Life has been quite normal. I've kept busy though.

I made a new wiggle bag!!!

We had a trip to Dore to see our friends. Unfortunately I had a little accident!! We went to play in the garden & I fell off the monkey bars & broke my wrist!! Oooops.
My mum didn't look too impressed!!!

Going to school!

Monday 5th February

Today I felt fine so I went to school (9am-1pm). After school I went to dancing and joined in with all three classes!!! 

Tuesday 6th February

Today I also went to school 9am -1pm and after school Milly and I had our piano lesson.

Wednesday 7th February

I was still feeling fine this morning so I decided that I was well enough to do a full day at school as I knew my class were making pizzas today!!!!
I went to Guides tonight.


Thursday 8th February

This morning the nurses came to flush my line so I went into school at 10am and came out at 2.30pm even though my mum thinks I could of stayed until 3.30pm, which is when my school finishes.



Friday 9th February

Today I decided to do a full day at school.


Saturday 10th February

Today I was still feeling fine and I felt well enough to go to dancing.

Home Again!!!!!!

We got home at 7pm on Thursday and now I have 5 weeks at home!!!!!! No more VIDE chemo for me!!!!!!!

( Counting down the time )

After being stuck in the hospital all week we decided it would be a good idea to take Daisy for a walk where we can take the wheelchair so I could get some fresh air. After our walk I even felt up to having a bit of tea.

3rd Februrary

Today we had some breakfast and took Daisy for a walk round Astley Park. I usually go dancing on Saturday but I was still feeling tired.

4th February

Today I am feeling much better. It must be all the fresh air!!!! So we went for another walk. 

Later, I was back at the hospital for another MRI scan that will help plan the surgery.

In the hospital!

31st January

Tonight some of my friends from school and Guides came to the hospital with Milly. We had so much fun playing in the teenage room and having loads of snacks in the the play room!

1st February

My dad was asked by the play nurse to bring our candyfloss machine in to the hospital. We made candyfloss for all the children in the ward ( and the nurses! )

Today, I saw Megan who had Ewing Sarcoma in her pelvis. Megan has now finished her treatment and she was just in the hospital for her last lot of Zonadronic Acid which helps strengthen your bones. She is going to have her line taken out in March and then she will ring the "end of treatment" bell. Already, Megan has got a full covering of hair and it has only been 2 months since she finished having chemo!!!!!!

I also saw Emily who has Luekaemia. We have been in the same bay a few times on Ward 84.

LAST CHEMO!!!!!!!

Today (29th Jan) I am back in for my last chemo before surgery!!!!!!! I am having surgery to get rid of the rest of my lump on the 8th of March and then my first clean up chemo is booked in for the 19th march!!!!

2 weeks a home!

Due to the new antisickness during the last 2 chemos, I haven't stopped eating and I have put 2 kilograms on, so now I weigh 33 kilograms which is the same weight as
I was before I started having chemo!!!!!!!
As I have only just about been passing my blood tests to check I am well enough to have chemo, Dr Brennan asked us to do 12 GCSF injections to boost my white blood cells instead of 10. I am not bothered about this because I am getting used to them now and they are not as bad as the antibiotics that I have to have twice a day every Saturday and Sunday (I really don't like the flavour!!!!)

Chemo Round 5

8th January

Today I am back in hospital for round 5. Six weeks after round 6 I will have surgery to remove what is left of the lump! and then once I have recovered from that I will start 8 more cycles of clean up chemo to get rid of any bad cells that are floating round my body which isn't meant to be as bad.
So far I am still not feeling sick and I am still eating. The new antisickness is still working!!!!

16th January

Today I turned 11!!!!!!!

22nd January

I went to school every day last week (half days). Today I was ready to go again until school rang up and warned us not to come in because  there is a sickness bug going round. So we went for a dog walk instead!!!!!

One of he side effects is joint pain. I have had sore hips since Saturday night so didn't walk too far this morning!!!

HAPPY NEW YEAR!!!

Over Christmas and new year I felt fine.

I even managed to do the panto (Cinderella) and I managed to do all 6 performances!!!!!!!

Today we are back in hospital for round 5!!! six weeks after round 6 I will have surgery to remove what is left of the lump and then once I have recovered from that I will start 8 more cycles of clean up chemo to get rid of any bad cells that are floating round my body which isn't meant to be as bad.